Well there always seems to be a doctor visit somewhere just around the corner for Reese. This week was a little unusual because we have had doctor visits 3 days in a row. We wouldn't want to be able to schedule them on the same day that would be way too easy:) It's been ok though because we have gotten alot of questions answered. Wed. was an appointment at Fit Well for a new custom compression vest and shorts, dafo's and a brace for Reese's left hand to help him hold things to write. Thursday was a check up with the trach doctor and we were able to ask him about the fountains of secretions we are getting these days which is a change. Come to find out the robinol we were giving him was less that half the dose it should have been. Changed the dose yesterday and it is a miracle no more secretions streaming from his trach. Today is an appointment with pulmanology to check on a vibrating vest that would loosen the junk he gets in his lower lungs. They are pretty expensive so the doctor thinks we should try it on a trail basis for a while so we will be seen and fitted for that today.
We found out at the beginning of the week that Reese's insurance had paid for his new DynaVox and so it was shipped out on Wed. We are so excited for Reese to have a way to communicate with the world and we feel so blessed that his insurance would pay for it.
By the way if you were all wondering we did not end up in the emergency room (my last post) we kept fighting at home and finally had a break through and he began to feel so much better. Thank you to my great home nurses who were willing to just keep on fighting with me so we wouldn't end up in the hospital.
Well I had better run to get gas and make it to our appointment on time.
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