JUST A FEW MORE THINGS TO DEAL WITH

Well I haven't posted anything in some time so I will try to catch everyone up on the happenings in our life.

Reese has been doing pretty well other than a nasty diaper rash. Mind you he does not get diaper rashes so we have tried everything with no luck. So last Tuesday I called our doctors office to see if she could see him. After being on hold twice for over 25 minutes I had no choice but to go to the ER. I hate going there because he always gets admitted. I thought this time would be different because surely they wouldn't admit us for a diaper rash RIGHT. WRONG because by the time we got to the hospital the rash was under both arms and on one leg. What the heck was going on. They started IV's and drew labs and then decided that it might be a strep rash and he would be admitted. I was so frustrated with the whole thing. The entire hospital seemed busier than I had seen it in a long time so waiting was part of the game. We were in emer. room for several hours before we got a room. When we finally went to our room it was time for meds and that became a joke. After finally getting his 8pm meds at 11pm he was so tired and so was I. We both fell asleep only to be woken by the RT about midnight. When I asked what see was doing she said she was going to do trach cares and change his trach tie. Are you kidding me! I stood up and said "No you're not doing that now." She informed me that if I refused she would have to chart that. I said, "I don't care what you chart just get out!" Needless to say we didn't see her again. I hate to be rude but sometimes the things that happen make no since. Really does anyone use common since? We were released the next morning and told that it was a yeast rash and we could treat it at home. Really if the doctors office would have answered their phone this would have been alot cheaper.

On Friday Reese started vest therapy and he loves it. He does it for 30 min twice a day and he is sounding clearer than he has in a long time. The RT who came to show us how to use the machine was so helpful and nice. We are excited to see how this goes. We are on a 30 trial before we decide to see if our insurance will pay for it. When I asked the RT how much they cost he said about $15,000. Man my insurance is going to be ready to kill me. Reese has two insurances and that has been very nice.

About 2 weeks ago Reese DynaVox arrived and we are so excited to use it. It will allow him to communicate. He can even email and text on it. My family is so excited. The person from DynaVox is suppose to come out this week and program it so we can begin to use it.

Well today is Valentine parties at the school. Even though Reese has not been able to go to school because I am using an agency that doesn't have a contract with our school district they have said he can come for the party today. I hope this whole school thing gets worked out because he missing being with the kids so much and they miss him too.

I will update everyone more often on our progress.